Our attorneys at Lebowitz and Mzhen Personal Injury Lawyers, have recently read a study on nursing home residents with advanced dementia, published in the October 15, 2009, issue of The New England Journal of Medicine. According to the report, dementia is not just a disease of the mind, it is a physical illness as well—a leading cause of death in this country, and should be recognized as a terminal illness that requires high quality palliative care.
The report, led by Dr. Susan L. Mitchell from the Hebrew Senior Life Institute for Aging Research in Boston, studied 323 nursing home residents with advanced dementia and their families, in 22 different homes over a period of 18 months. The goal was to better understand the clinical complications of dementia and the families’ comprehension of the dementia prognosis, in order to make the right decisions in patient placement—reducing pain, suffering and nursing home injury and neglect in the final stages of life.
Patients with advanced dementia experience severe memory loss, have difficulty speaking, are restricted to the bed, and are totally dependent on others for care. The report argues that because dementia is consistently not recognized as a terminal illness, patients with advanced dementia are not being diagnosed as high risk for death, and are receiving poor palliative or nursing home care.
Mitchell argues that families need to clearly understand the prognosis of advanced dementia as a terminal illness, and the complications to expect, so patients can receive proper advanced care—like access to a high quality hospice, or improved skilled nursing home services. The goal, states the report, is to avoid patient suffering and pain, as well as nursing home negligence, due to lack of skilled nursing home services and supervision.